Thursday, June 16, 2011

Day 3

On Wednesday morning it appeared that Noah wasn't having any seizures. Although Noah's Absence seizures are hard to see sometimes we weren't seeing any of the more noticeable ones. Later on we were noticing some so he is definitely not seizure free and he may still be having up to 20 an hour. It is still super early in his diet to really see any change, however not impossible. Some children do not have any results for up to 3 months.
Noah was able to keep down 4 ketogenic meals at a 1:1 ratio. He is no longer in acidosis and his blood sugar levels are normal :) He is overall feeling great. He is getting all the sleep he needs. Jon and I on the other hand are a little puffy eyed and running on caffeine.
This morning (Thursday) Noah was able to be disconnected from his IV, R2D2. He has been playing in the play room and is so excited to be able to walk around detached from his "robot". His dietician is thinking about going up to 2:1 ratio later on or possibly even sending us home :) Instead of going with the original plan of increasing his fat daily it may be weekly so he can tolerate it better.

Praise:
Noah has an overall great attitude albeit a little spoiled :)
Noah is eating his meals and keeping them down.
Acidosis and blood sugar levels are good.

Prayer Requests:
Noah still is stubborn about drinking his cream and we will be increasing the amounts as we go up in ratio. Please pray he will begin to like it or we can find other ways for him to drink it.
Continue prayer that the diet will control his seizures.

2 comments:

Anna said...

praying for you and Noah!

Kim said...

A>MAZING!!! We are praying for you guys every morning! Love you all so much!