Friday, November 2, 2012

Quick Update

A couple weeks ago Noah had a routine EEG and it came back completely clear of seizures. Yay! He is doing great and because he is doing so well we are able to go up in calories and down in his ratio. We started at a 4:1 ratio (4 parts fat to 1 part carb + protein) and we are now down to a 3:1. This isn't a huge change in his food but it does open it up for a few new recipes. One recipe is a cutout cookie and the other a carrot cake recipe. Both are great for the holidays.

We pray continually for Noah and that the diet will continue to work. I specifically am praying that as we slowly (very very slowly) go down in his ratio and creep closer to the 2 year mark, which is June, we can wean him off of the diet. I am trying not to have too high of hopes but it is a real possibility.




Thanks again for your love and prayers!

Monday, August 20, 2012

Bye Bye Medication

Our little epilepsy warrior has been fighting for over one year now on this crazy, yet amazing, diet. Now, 1,700 meals and 850 snacks later he is completely medication free! God has worked an incredible miracle in Noah's life and has given him his spark in life back. I have lost count how many medications Noah has been on and tried and only one of those worked for one kind of seizure. Never did I dream a year ago that he would be seizure free as well as medication free. We continue to praise God daily and pray that this is the end to Noah's epilepsy.
Noah will continue on his diet for another 1-2 years (praying that we can wean him off next summer) if all continues to go well. Although he still struggles with his diet he is being so strong and brave! Noah is learning some amazing self-control at a very early age. He will be one amazing, disciplined man someday. I am so excited to watch him grow and see how God uses this time in his life to mature him and grow him closer to God.
Noah is going to Crosspoint School for 1st grade this year and he is super excited. It will be hard to have him gone for so long each day but I am very excited to see him grow, learn, and meet new friends. He is our little sponge and wants to learn everything he can, especially if it happens to be about dinosaurs.

Family photo at camp. Motocross is one of the boys' favorite things to do at camp.

Our little fish.

The boys were ringbearers for a close friends wedding.


Digging for dinosaur bones.

We eat in the dining hall every day at camp and each meal the boys dress up in a new costume. They were FBI agents here.

Silly reading time with brothers.

One of Noah's lego creations. A viking ship.

Getting ready to run a mud run for World Concern.

Not too muddy. He seems to find a way to stay clean.



Sunday, June 17, 2012

"Greatest Success Story"


A lot has happened since our last blog and I think the best way of sharing is by pictures. So here they are:

On March 31st we held a 5k walk to raise money for epilepsy. We raised $1600! Thank you to all of our friends and family who came out and supported Noah and many other people who suffer from epilepsy. It was really wet but we all had a good time.



The walk was getting a little long and wet for the kids.


Momo with almost all of his grand children on Easter.



Noah's kindergarten graduation. A year ago he was having so many severe seizures we didn't think he would  be able to go to kindergarten.



So precious!








Noah is doing amazing! He turned 6 years old in March, has graduated kindergarten, and yesterday we celebrated his 1 year mark of his diet. It has been a long year but so good! In 2 months he will be off of all medications. His doctors say that he is their "greatest success story". Thank You Jesus!