Day 2 at Swedish

Tuesday morning we woke up to more vomiting. Noah had his blood taken (which is never a fun experience although he tolerates it) and it showed that he has high acidosis. His acid levels are high which is causing him to vomit. Although this is not good it has caused him to be immediately ketonic which is what we want for this diet. Along with acidosis his blood sugar is also low so he has to get pricks often to check the levels :( Due to all the vomiting we had to give him an IV :( This is never fun! The child life specialist (Evi) promised to bring him a transformer the following morning which brought a smile amidst the tears. We love Evi!!! After the IV and many hours of sleep Noah woke up with new energy and spunk. He has now been able to hold down two meals (both at a 1:1 ratio instead of a 2:1). Praise God! He is doing so much better. We haven't had any battles with food and he is fun to be around. His seizures seem to already be decreasing although it is difficult to tell for sure without an EEG. If his seizures end up stopping before we ever get to a 4:1 ratio than there is a chance we could stay at a 3:1 ratio which would allow for a lot more meal options. We are praying for this to be a reality.
Since yesterday morning, and who knows how long before that, a tiny baby has been screaming. Not just the kind of screaming of not wanting to be here but of intense pain. There are small intervals between the cries, when we think the baby is calming down, but it ends up just being a long breath and the wails start again. It is so heartbreaking to hear and shows us how good we have it right now even in the more difficult times.
Day 2 has had many more ups than downs and that is so encouraging.

We are 3 hours into day 3 and no signs of seizures!!! Can this already be happening? Is it really true? Our hopes are high although this seems too early to be true. We know are God is a God of miracles and nothing is too big for him. Praying for this to continue and we thank you all for your prayers as well!!