Noah's Journey with Epilepsy: Poke, Poke, and More Pokes

Poor Noah has been suffering from low blood sugar for the past week. Of course it always happens over a 3 day weekend when you cannot talk to your physician. Thankfully, we have a wonderful and loving camp nurse who has been more than willing to help us with taking Noah's blood sugar since we didn't have a tester. His blood sugar was down to 40 a few times and average is probably mid 50's. Apparently, this is not as severe as we were thinking. I talked to Noah's nurse on Tuesday and she said when you are in ketosis you may have low blood sugar but it doesn't usually cause you to be as symptomatic as you would be not in ketosis. However, he has been pretty symptomatic, especially in the mornings. He wakes up very irritable, lethargic, and mumbling his words (pretty much the same way I do). We have given him a few teaspoons of apple juice a few times and he immediately perks up. I have been making his breakfast right away in the mornings and we split his lunch up into 2 snacks so that he doesn't go as long with out eating. This seems to be helping.

Other than his blood sugar he seems to be doing pretty good. He is doing just fine on a 3:1 ratio. We are going to give it another week to hopefully normalize his blood sugar and then we will be bumping up his ratio one last time to 4:1. It will be nice to finally be at 4:1 for many reasons. Hopefully we will start seeing some good results of this diet and less seizures and also I will be able to start mass producing some of his meals. We keep changing his ratio so I pretty much just do one or two meals at a time but when we are on 4:1 I can plan for the long haul.

Thank you again for all your continued prayers for Noah. We are finding some good recipes that he is enjoying. Lately, his seizures seem to be decreasing but his kind of seizures are really hard to notice, so until we have an EEG (hopefully in a month) we won't know for sure.

Here are some pictures of what Noah has been up to lately.