We now have officially switched to a 3:1 ratio. 3 parts fat to 1 part
carbs + protein. I am always surprised how much moving up one ratio makes. Noah's portions are almost cut in half because most of his calories are coming from his cream (which he still is not a fan of but tolerates it in soda). Noah has 4 meals a day (or 3 meals and 2 snacks) and each meal has 350 calories. When he was on a 1:1 ratio his meals were very large but now since most of his calories are from cream they seem so small. Even though he is getting the same amount of calories he says he is hungry often just because he isn't "chewing" much. Last night we tried miracle noodles. They don't have any
carbs or protein just plain old fiber. I was nervous to try them because he is a picky eater and they didn't look good to me but thankfully he ate them without any problems. The nice thing about these Miracle Noodles is that he can have as much as he possibly wants since they don't have any calories. Miraculous, right?
Two days ago I found a chocolate peanut butter cup recipe. It contains butter, no
carb and no sugar chocolate sauce, sweetener, and peanut butter. I freeze them in molds and pull them out for his evening snack. He loves them!!
Lately, Noah has been very lethargic, irritable and depressed. Yesterday, he cried for an hour and said he didn't know why. Today I took him in for some blood work to make sure everything is ok. It was nice in the hospital because they checked his blood often and we knew what was going on in his body all the time. We are now waiting on his results.
Please continue to pray for our precious boy. Its hard when you are on such a strict diet and we aren't seeing any good results yet. We still have a few months before we might see any change in his seizures. We are so thankful he is willing to try foods he would have never touched a month ago. He is being so brave!
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